A relative has late-ish stage pulmonary fibrosis, needs oxygen in bed, and can’t walk around even with oxygen. He’s getting kicked out of the hospital because they can’t improve him, but he might live another year or two and doesn’t want to pay for hospice. I can’t imagine his wife dealing with all his needs (they’re both in their 70s) but I’ve no idea if there are programs that get him care without leaving his wife destitute. They have a fair nest egg and own their house, but he doesn’t want to ‘waste’ their money on health care. I kinda get it, but also: he needs care.

Anyone know of programs to look at? I’m looking for useful links, but I keep hitting things that either look scammy or like they won’t apply (example: if he is deemed ‘disabled’, doesn’t the govt. basically not care at all until you are broke?)

  • memfree@beehaw.orgOPEnglish
    2·
    9 months ago

    I’m sorry for your loss. That is quite a cautionary tale.

    Please don’t blame yourself for the Nursing home issues. They are supposed to be care givers and they failed both you and your dad. Be angry at them – not at yourself. It sounds like you did the right thing in moving him. You DID look out for him. You DID care care work to make things better.

    • TheBaldness@beehaw.orgEnglish
      2·
      9 months ago

      Thanks. The screaming wasn’t something I was ready for, and it stayed with me. The staff’s indifference to someone screaming is equally shocking. This is why hospice is so important. They know what to look for before things get to that point.