Oliver McGowan was 18 years old when he was hospitalized in England with recurrent seizures and pneumonia. He was autistic, and he and his parents had one specific request for the medical team: no antipsychotic medications. When he had taken them in the past, they made his seizures worse and had devastating effects on his mood. Despite the family’s vehement protests, doctors gave him an antipsychotic. A few days later, Oliver suffered a lethal neurological side effect. A week later, he was taken off life support. An inquest into his death found that the drug had led to the rapid deterioration.
After his death in 2016, his mother, Paula, launched a campaign to mandate training on intellectual disability and autism for health care workers. In 2022, the U.K. National Health Service listened. Now, all health care workers in the NHS must complete both an online module and a live interactive session covering communication and accommodations needed for this population. The U.S. needs to follow suit, starting with medical schools.
Exactly. Patients and their doctors should work together as much as possible, because ultimately it’s the patient’s body and they should get to decide what they want to do. A doctor should be able to answer questions, give recommendations, and discuss treatments, not just say “here’s what I say, and I went to medical school so clearly I know what’s best in 100% of situations.”
Not trying to say that doctors aren’t the medical professionals or that their opinions shouldnt be taken seriously. But they’re human, just like everyone else, not omniscient beings who never make mistakes or misinterpretations.
Knowing how to treat autistic people isn’t being fucking omniscient, it’s bare fucking minimum knowledge a medical professional should have, jfc… 🤦♀️🤦♀️🤦♀️