• LazaroFilm@lemmy.world
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    1 year ago

    We will give you just the right amount and you need to remember to call your doctor, make sure to get a confirmation of the prescription renewal, check with your pharmacy that they received it. Go and get your medication. All that within 3 days of you running out. Also the pharmacy is out of your medication and we’ll get it on about 4 to 7 days. Now you need to remember to call them to check if they received it every day. And that’s how I spent two weeks without meds. I didn’t feel any withdraw, but my wife had to constantly remind me to do things that I could do without reminder while I took them. This is the dumbest system ever.

    • Pazuzu@midwest.social
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      1 year ago

      and delays in picking up meds don’t count towards the 30 day wait until your next script can be picked up, so waiting 2 weeks for the pharmacy to figure things out is 2 weeks of meds you don’t get back. the 30 day clock doesn’t start when the script is sent in or even when it’s filled, only when you actually pick it up. so dumb

      • Model_M_Typist@lemm.ee
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        1 year ago

        That part is so frustrating. With the delays now I’m just trying to take less because I know I’m going to be without it.

        • Caradoc879@lemmy.world
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          1 year ago

          If your doctor is chill, maybe see about doubling your dose so you get two months out of each bottle. And if they’re not chill convince them you do need your meds upped and no one ever knows.

    • LaunchesKayaks@lemmy.world
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      1 year ago

      My ADHD meds are on backorder. I have 4 doses left and no clue about when the pharmacy will get them in. I call my pharmacy every day and they have no clue when they’ll be in.

      • ickplant@lemmy.worldOP
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        1 year ago

        If you are in the US, try Costco pharmacy. They have been a godsend during the shortage in my area.

        • LaunchesKayaks@lemmy.world
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          1 year ago

          There aren’t any cotscos near me. I live in a very rural area. I may see if my pharmacy can send the script somewhere that does have the medication. They do that sometimes, but only if it isn’t a shortage in our entire area. :/

          • Boz (he/him)@lemmy.one
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            1 year ago

            I think Costco has a shipping service, though certain medications can’t be shipped. I’d give them a call, and see if they can get meds to your area.

            • LaunchesKayaks@lemmy.world
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              1 year ago

              I’m just hoping it ends soon. Every other stimulant other than the one I am on messes with my heart condition. :(

      • LazaroFilm@lemmy.world
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        1 year ago

        Call your doc, maybe they can look for an alternative. Last time the pharmacy was out of my dosage but they had the smaller dosage which is better than nothing.

      • improvisedbuttplug@lemmy.world
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        1 year ago

        If it’s possible in your area, I’ve had an easier time dealing with an independent pharmacy than with any of the big chains.

        I go to a small pharmacy that is located inside a larger hospital. They have more limited hours than the big chains but they’ve always had my meds and been easy to get info from over the phone.

        I’ve had lots of shit experiences with CVS/Walgreens/Costco

    • JackbyDev@programming.dev
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      1 year ago

      Yeah, every time I have to get any other medicine I’m always blown away. The doctor is just like “what pharmacy do you go to?” Like, uh, excuse me? They just phone it in??? I have to physically take a physical piece of paper and physically go to the pharmacy but you’re telling me the norm is to just call it in???

    • Viking_Hippie@lemmy.world
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      1 year ago

      Absolutely. The only way I ever remember to take my ADHD meds is by them working as intended.

      Turns out that being able to more or less function in a society designed for neurotypicals IS kinda addictive!

      • LazaroFilm@lemmy.world
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        1 year ago

        I found the the health app in iOS has a pill reminder you can setup. It will pop a reminder to take your pills at the right time and stay on your Lock Screen until you long press it and tap mark as taken. It’s pretty neat. It also keeps a history of all the meds you took. You can also use times reminders for other repetitive tasks (I have brushing g teeth in the morning, taking out trash and starting the dishwasher setup) it’s pretty neat.

        • Viking_Hippie@lemmy.world
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          1 year ago

          I’m on android but have apps that remind me of most of the things I need to remember, including meds, helping me get places without getting hopelessly lost, play audiobooks or podcasts so all the traffic and people noise I can’t otherwise filter out doesn’t completely drain me and much more.

          It’s such an enormous help, but without the meds, I wouldn’t have the mental energy and focus to do 95% of it even WITH the app health. I’m so glad that my Strattera is relatively easy to get and refill (as long as I remember to renew the prescription in an app after I run out of refills) here in Denmark!

  • SighBapanada@lemmy.ca
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    1 year ago

    Outsider without adhd here… Is this really a thing? If the medication makes you feel better how would you forget to take it?

    • ickplant@lemmy.worldOP
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      1 year ago

      Poor memory is one of the symptoms of ADHD. We get easily distracted and often have time blindness, meaning it’s hard for us to tell how much time has passed and estimate what time it is. I have to take my meds 3 times daily roughly 4 hours apart. If I don’t set alarms, I’m screwed.

      • synack@lemmy.world
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        1 year ago

        It’s my first time hearing of the term “time blindness” and it fits so well.

        • ickplant@lemmy.worldOP
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          1 year ago

          One of my favorite sayings is people with ADHD have two time settings, “Now” and “Later.” When you come to us with a request, we think it must be done NOW unless you explain otherwise. Then, it gets puts into the “Later” pile, which ranges anywhere from 5 minutes to 5 years.

          • jandar_fett@lemmy.fmhy.ml
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            1 year ago

            LOL. This resonates with me so strongly and I don’t know whether to laugh out loud or break down crying…

          • Metacortechs@lemmy.stellarvortex.com
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            1 year ago

            Holy shit. I need to explain this to my partner tomorrow when she’s up. I’ve been struggling so hard to find the words to explain how my timing mechanism for things she asks me to do works. Thank you!

            We’re using a shared calendar with reminders which is really great. Until I dismiss the reminder, putting it in the later pile…

        • LazaroFilm@lemmy.world
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          1 year ago

          Time blindness and hyper focus are so prevalent! And that’s how you forget to eat lunch and you suddenly need to eat right now at 5:47. No time for a sandwich, just put the bread in the mouth and the jam after, it’ll mix up into a sandwich in your stomach.

      • Jessica@lemmy.world
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        1 year ago

        Sounds like you’re on Ritalin? You might try name brand Concerta (NO GENERICS!!). It’s just extended release Ritalin in a fancy patented delivery mechanism that all the generics can’t copy. It lasts all day and I just have to remember to take it before noon once per day.

        • FoulBeastie@lemmy.world
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          1 year ago

          I’m on generic right now and it’s been alright for me. Maybe name brand would work better but it’s just unaffordable, for me it would have been almost 500$/mo

          • Jessica@lemmy.world
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            1 year ago

            A bunch of generic Concerta drugs were removed from the market awhile back and several more sprung up. They’re nowhere near the same and the quality is garbage. I was on one in college while on state insurance. They use some older release mechanism from like the 80s using a pinhole on one side and half of my true generic pills didn’t even have a visible hole. I ended up in the ER because one released all at once at like 7pm, and I thought I was dying due to excessive adrenaline.

        • trafguy@midwest.social
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          1 year ago

          Same as Vyvanse (lisdexamphetamine, IIRC?)? There will likely be some generics in the US in a few months since their patent/exclusive rights are about to expire. Not sure if it might be similar in other parts of the world, but it may be worth looking into if you’re paying much out of pocket. With some pretty decent insurance I’m paying $50 each time I get a refill, without insurance here it’s something like $400

          • Jessica@lemmy.world
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            I have no clue what out of pocket is these days, but my insurance only charges me $12 for name brand Concerta. I know at one time there was an authorized generic sold by Janssen I believe was their name, but it’s still the same patented pill. That might be what my prescription is filled as.

            PSA for anyone who cares: Authorized Generics are the name brand sold cheaper. True Generics are a completely different pill sold as “bio-identical”.

            Don’t quote me on this last bit, but I believe bio identical only has to be like 80% similar, which is why so many generics cause so many problems for so many people

            • jandar_fett@lemmy.fmhy.ml
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              1 year ago

              What insurance company do you go with, if you don’t mind my asking? I’m heading down the road towards trying medicine possibly if I get an official diagnosis and want as much info as I can get between now and then. Thanks in advance btw and for all the sharing of info in this thread in general. It’s really helpful.

      • LazaroFilm@lemmy.world
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        1 year ago

        Have you asked your doc for slow delivery pill? I switched to 2 pills per day to a single one in the morning and it’s so much better. Plus I don’t feel the spike like the regular one but more a steady feeling of clear brain throughout the day.

      • jandar_fett@lemmy.fmhy.ml
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        1 year ago

        I wonder what other mental issues/ deficit disorders have the “time blindness” as a symptom? I have that and it is a very specific thing to have, and I’m currently trying to figure out if I have ADHD or what I have because there are definitely things about my behavior my whole life that have kept me behind everyone else, noticeably to myself anyway. Stuff I’ve had to just cope with, but still puts me at a disadvantage. Mathematics for instance. I can barely do algebra and I’m talking high-school level, no matter how hard I try, and my memory is shit, and it takes effort to stay on topic, or to stick with the same thing I’m doing. I hate routine and crave novelty but lack of routine ushers the chaos back in.

        • ickplant@lemmy.worldOP
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          1 year ago

          I’m not sure what else has time blindness as such a prevalent issue. What you are describing could be ADHD (especially the “I hate routine and crave novelty but lack of routine ushers the chaos back in”), a learning disability, a something else. Only a professional can tell.

        • Boz (he/him)@lemmy.one
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          1 year ago

          I think mood disorders can affect sense of time, for one, though it sounds like you have good reasons to wonder about having ADHD.

          But don’t forget, it’s not necessarily “ADHD or what,” it could be “ADHD and what.” Some ADHD treatments are relevant to other conditions, and vice versa, but there are some overlaps that require a different approach from straight ADHD, so it’s best to keep an open mind.

    • MrTulip@lemmy.dbzer0.com
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      1 year ago

      Part of ADHD. You forget things, beneficial or not. I usually realize when I’m on the way to work, then do the math of turning around for it, and how late I’ll be if I do.

    • Wojwo@lemmy.ml
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      One of the downsides of adhd is, if left untreated, it can lead to substance abuse. One of the upsides is it’s easier to “forget” that you’re addicted to something. I once forget to drink caffeine for a few weeks. Just slipped my mind. I still had the withdrawal symptoms. Headaches, low energy etc., but my brain would not connect the withdrawal to the substance, because from my perspective caffeine did not exist. It was a weird experience.

      • frogfruit@discuss.online
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        1 year ago

        I’ve done that a few times. I also quit smoking that way when I ran out of cigs, didn’t buy more right away, then forgot to ever buy more. I started back up months later, switched to vaping, then forgot about that too when I moved the vape from it’s designated spot to an area of the house I don’t frequent.

    • PixelProf@lemmy.ca
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      1 year ago

      I’ll just add that routine is in itself a major challenge - for me, I don’t have routines as much as I have laying things out in a way that reminds me to do things regularly. For my meds, I just take it once in the morning, but the one routine I try my best to maintain is flipping the pill bottle upside down. If it’s upside down, there’s a high chance I either took it, or forgot to flip it before bed, but it’s a visual reminder so that I don’t need to actively remember to take them on routine, but if I see the pill bottle in a state, I know what action to take.

      That’s probably one of the hardest things I’ve seen family members try to understand. I’m not trying to imply anything about you, this is just a related example, but I’ve had family members see my ADHD family members as just being lazy or intentionally ignoring things, or thinking they’re just selfish or whatever. The problem is, even if it’s beneficial, a part of ADHD is not having control over where your memory and focus is being put. You may want something, but that doesn’t mean you’ll sustain attention or effort to achieve it, and conversely you may place it in places you really don’t care about to a very consuming degree…

      • xander255@lemmy.world
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        1 year ago

        By the way, they make medicine bottle caps that have a timer showing when it was last opened. Super handy for this.

    • LazaroFilm@lemmy.world
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      1 year ago

      Imagine a pull that if you don’t take it you forget things. So if you forget it once, you may forget the next and so on. Also, the medication is not a miracle cure. Things are easier to think about and remember, but it’s still a process and sometimes you just forget.

      The way ADHD works is that things that others would just instinctively do or remember to do, you have to actively think about. Its like if I ask you how do you breathe, or walk, you think of it and it happens, then ADHD analogue would have to think, use this muscle, contract, hold release, okay, next one, and so on. It’s draining, and when you forget to do it and others realize it, they’re dumbfounded why you didn’t walk or breathed, you must be so lazy to not even want to walk or breathe…. The medication allows you to think okay walk now, instead of each action separately, but it’s not just think and it happens still.

    • gravitas_deficiency@sh.itjust.works
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      1 year ago

      I often forget mine.

      That, or I cannot, for the life of me, remember whether or not I actually took my medication. Or locked the door of my apartment, or my car.

      Both patterns are a fairly classical presentation of ADHD.

      • CoderKat@lemm.ee
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        1 year ago

        I have a phone app (MediSafe IIRC) that has both reminders and tracking.

        Though it’s not 100% perfect. It’s still easy sometimes to get distracted for too long.

        • gravitas_deficiency@sh.itjust.works
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          1 year ago

          Ah, but what happens when I take the medication, and then forget where my phone is, or to use the app, or get distracted by something on lem-

          Oh no

      • Rodeo@lemmy.ca
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        1 year ago

        I cannot, for the life of me, remember whether or not I actually took my medication.

        Get a dosette, then just look at it. Is today’s compartment open? You took your meds. Pills are still in there? Time to take them.

      • Pazuzu@midwest.social
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        1 year ago

        I bought these things on amazon and they’ve been super helpful, just push the button in for the day as you take it. doesn’t help me remember to take my meds but at least I can easily tell if I have taken my meds

    • 🇰 🌀 🇱 🇦 🇳 🇦 🇰 ℹ️@yiffit.net
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      It’s so much easier to be distracted and completely lose track of time with ADHD. Your mind doesn’t necessarily think about things that are “boring” like taking medicine. Or even eating. So you forget to do it. I literally have reminders on my phone to make sure I eat because I have gone days without eating until someone noticed me looking all fucked up.

      • Cirom@sh.itjust.works
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        1 year ago

        That’s a mood. If I didn’t have a proper eating routine, I would routinely forget to eat (as I sometimes do anyway!)

      • CoderKat@lemm.ee
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        1 year ago

        Or sometimes I’ll remember I need to take my meds or whatever. But I get distracted by something and immediately forget. Over and over.

    • salt@lemmy.world
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      1 year ago

      It is absolutely a thing. Forgetfulness, absent-mindedness, short attention span, etc. are common symptoms of ADHD. The meds generally wear off at the end of the day, so by the time the next day rolls around, you’re back at baseline, which includes the forgetfulness.

      ADHD can be incredibly debilitating and I think it’s something that most people don’t really grasp despite how well-known the disorder is.

    • TronLives@lemmy.nz
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      1 year ago

      I always want to wait till I eat to take my meds and then I forget to eat and then I forget my meds

    • LadyAutumn@lemmy.blahaj.zone
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      1 year ago

      Adhd makes you more likely to struggle with daily routine. I have failsafes to make sure I take my meds nowadays, but I used to struggle a lot with it.

    • DessertStorms@kbin.social
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      Autistic person jumping in - we too may have issues remembering to do beneficial things like take meds, eat and drink, and even use the bathroom (thankfully usually the body gives a stern reminder before it’s too late with that one lol).
      Routine is important to many autistics, but personally to me, it isn’t really time dependant, so I have the same breakfast every day but it might not be at the same time every day (don’t sleep well, sleep patter varies widely), so taking pills at the same time each day is asking me to use a system I don’t usually (go by body signals as best I can tell and order of actions, not by time). I hope that makes some sort of sense?

    • Eccentric@sh.itjust.works
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      Just to add on, since it’s a stimulant, it has to be taken before a certain time every day. Unlike something like antidepressants, which if you miss a dose you take it as soon as you can, if you miss a stimulant, you can’t take it again until the next day

    • UnicornKitty@lemmy.world
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      It’s actually super easy to forget to take your meds. I have autism not adhd but my daughter has adhd. She is chaotic and can’t keep to a routine. She tries, but you know how it goes. I forget to take mine when my routine gets changed which has happened a lot lately.

    • Kit Sorens@lemmy.dbzer0.com
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      You can’t take it past a certain time or you won’t sleep. It’s not like antidepressants where you can take it at any time. If it’s 11am and I remember why I’m so spacey, I gotta wait until tomorrow.

      • xintrik@lemmy.world
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        1 year ago

        My brain relaxes so much on ritalin I’d almost say it’s easier to sleep. My extended release only lasts around 5 hours anyway.

        • Kit Sorens@lemmy.dbzer0.com
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          Rit gave me panic attacks. Vyvanse was the best, but I was switched to Adderall which was definitely stronger, but also more stimulating than vyvanse or ritalin.

      • Rodeo@lemmy.ca
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        1 year ago

        Not all antidepressants are like that. Wellbutrin taken in the evening will definitely fuck with your sleep.

    • Dioxy@programming.dev
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      I’m with you on this one, but everyone experiences this differently. I have never forgotten a single dose since I started about 5 years ago. The difference with and without medication is night and day, I’m barely at 20% functionality without them, and 90-100% with.

  • Rick@thesimplecorner.org
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    1 year ago

    Or me this morning… "Did, I take my meds this morning? My water was on the counter right next to where my meds are, no I definitely didn’t take my meds… right? No, i totally didn’t, but what if I did? [Proceeds to count out pills in bottle.] For the record… I did take it.

      • Moonguide@lemmy.world
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        1 year ago

        Pill containers for one day is also good. Stick whatever you need to take in there in the morning, go about your day. If you have pockets you’ll feel it there and remember to check.

        I still manage to forget to take the green pill come noon sometimes though.

        • Boz (he/him)@lemmy.one
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          Oh dear lord, that is my least favorite thing about pill caddies, lol. Especially when the labels have worn off, and I’m sitting there poking the braille like: “You’d think I would recognize the patterns by now, given that the labels disappeared like, a year ago…”

          … actually, no, that’s my second least favorite thing about pill caddies. My actual least favorite is that mine are not waterproof. Ask me how I know, lol.

      • oocdc2@lemmy.world
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        1 year ago

        I unapologetically have pill caddies for my morning, noon, and night pills–no way I’d remember or keep track without them.

    • PixelProf@lemmy.ca
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      1 year ago

      Yeah, just posted another comment, but I have my bottle flipping trick. If it’s upright before the afternoon, I didn’t take it. I take it, and flip the bottle upside down. Then if I see the bottle upside down after noon, I flip it upright.

      I still have days where I need to try to mentally piece together, “Did I drink water? How thirsty was I? Was I really thirsty, and just drank to hydrate and NOT take my pill or did I drink to take the pill and forgot to flip it? Did I take it and just forget to eat? How much have I been singing on repeat this morning?”

    • ickplant@lemmy.worldOP
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      Ugh, the times I had to count my stupid pills to determine if I took the dose or not.

  • 🇰 🌀 🇱 🇦 🇳 🇦 🇰 ℹ️@yiffit.net
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    I’ve seen so many people without ADHD describe taking Adderall, making it sound like the god damn drug from Limitless (and is probably what inspired that movie TBH), and then people who take it for ADHD also sound like they gained the super power of “not fucking up constantly.”

    So I’ve wanted to try the shit even before I found out I had ADHD myself, and want to try it especially now that I know I have ADHD.

    • ObiGynKenobi@lemm.ee
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      That’s just an ADHD thing. They can do a line of coke and all it does it allow them to feel like they don’t have ADHD for a little while.

      • ickplant@lemmy.worldOP
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        1 year ago

        That was exactly my experience. It was the most boring drug ever, just made me focused. My friends were partying around me, and I was like “cool, I can plan my meals for the week in my head. Yay.”

        • FactorSD@lemmy.dbzer0.com
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          1 year ago

          I guess YMMV on whether focused is boring or not. I agree that I never really found stimulants to be super interesting, but thats partly because it was too expensive to do coke just to work on whatever project was on my mind.

  • Cyanogenmon@lemmy.world
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    1 year ago

    God dammit. I haven’t been diagnosed but literally every single post to the letter sounds like me.

    I REALLY need to get medicated.

    • You should probably get diagnosed before medicated. ADHD has overlap with a ton of other mental illnesses. Maybe you’re autistic. Maybe you have BPD. Or are bipolar. Or just depressed.

      Always see a doctor before taking medication.

    • XIN@lemm.ee
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      1 year ago

      This meme literally doesn’t apply to you then!

      Jokes aside: It was the memes that piqued my curiosity, then got me reading more formal sources, took an ADHD self test which I scored fairly high on but there were a few things I didn’t really see in myself. Waited a year to see if it was just me obsessed wiith another idea that would go away like all the others after a week or two.

      Well I couldn’t shake the feeling and now that i knew some of the symptoms to look for, I was noticing the symptoms I hadn’t thought applied to me before.

      Anyway, I went to a doctor and a therapist and am now, for the first time in my life, developing positive routines and habits and enjoying things that aren’t exceptionally interesting.

      tldr: saw myself in a meme, doc agreed, now i take pills that make life easier.

      • Cirom@sh.itjust.works
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        1 year ago

        So uh, what was that self test you took?

        I kinda want to be a bit more sure myself before going to doctors and such, because a lot I’ve heard about ADHD seems eerily familiar. (Heck, more familiar than Asperger’s which I actually HAVE been diagnosed with, but I heard the two tend to go hand in hand anyway. Would like more sources on that, though.)

      • paris@lemmy.blahaj.zone
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        1 year ago

        A big part for me was also going through the DSM-5 and using that to diagnose myself using the official criteria. Ended up finally getting medication that works for me (after fighting the US healthcare system for like a year) and I take it when I need to focus up for the day, assuming I actually remember to take it.

        DSM-5 via Anna’s Archive (I’m on mobile right now so I haven’t checked how good this pdf is but there are a bunch of other versions if this doesn’t work)

    • jandar_fett@lemmy.fmhy.ml
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      1 year ago

      Maybe you do, but do you really want to get on medication for a thing you aren’t 100% you have? Do you have health insurance? Reason I ask is that ACA plans all have to treat mental health like normal medical coverage, so there is a good chance you could go see someone to talk about whether you may or may not have ADHD and other stuff for cheap, and if your plan doesn’t have good coverage you could maybe look into switching to one that does once open enrollment happens again.

      • Cyanogenmon@lemmy.world
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        1 year ago

        Oh I definitely want to officially get diagnosed.

        I do have health insurance. Thankfully open enrollment doesn’t nexissarily apply to me, got a kid due in November so I’ll be able to modify the plan as I see fit!

  • Hikiru@lemmy.world
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    1 year ago

    I definitely forget to take my meds sometimes but I usually always remember if I took them or not at least

  • federated_toast@lemm.ee
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    1 year ago

    How bout those of us who forget to pick your meds up for a month and then need a new script written because controlled substance scripts only last for 30 days?

      • Cowabunghole@lemmy.ml
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        1 year ago

        Maybe because “take upvote” doesn’t contribute at all to the discussion. I mean, that’s literally the point of the upvote, you don’t need to comment as well if you’re not adding anything that other people want to see